tiedyedicorn posts
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IMPORTANT HEALTH RELATED MESSAGE 6: Tmrw morning (sunday at 8:15am) I start my high dose chemo! Monday morning, I start my 2 sessions a day of total body irradiation, whilst continuing my high dose chemo. Dec 6th friday, I go inpatient for a long month or two of bone marrow/ stem cell transplant. Please pray I don't have tons of symptoms/ side effects.. I know for sure I'm losing all of my hair everywhere (and I mean EVERYWHERE lmao), but it'll grow back eventually. I can't wait to be completely cancer-free here soon!
IMPORTANT HEALTH RELATED MESSAGE 5: Hi! It's been a while! I'm still alive! So much has happened (good and bad) since my last update (which was forever ago)! I'll keep it short and summarized as best I can! I'm currently around halfway-ish through my 2nd cycle of the IV drug (called blinatumomab), after having all of September as a break, due to bl00d counts being too low. My birthday also came and went (Oct 17th)! I'm in the 1st (of 4) stage of remission!!!! The plan is, to finish this cycle around Nov 1st, then it's...
IMPORTANT HEALTH RELATED MESSAGE 4: Yday, i had my first outpatient cancer doc appt. They unloaded so much info on me it left me pretty scatter brained for a few hrs after and needed a bit to relax lol. At least I didn't have to do a bl00d transfusion since I didn't have to do 1 Sunday, but they still drew bl00d for updated labs, which is fine. There's just more that's happened too. Like, next steps. To sum it up; a port in my chest vein so they don't gotta prick me all the time/ so I can take IV any time (even at home, wh...
IMPORTANT HEALTH RELATED MESSAGE 3: I had my first outpatient appointment today to see if I need another bl00d transfusion and I did NOT! My red bl00d cells and platelets are at a great level currently! 😁 Next appt is tmrw to check my eyes to see if there's any improvement in the bl00d spots and swelling (yes, my vision is still impaired by my cancer...), but I was told since it didn't hit the optical nerve, it should recover over time. Thank you for your kind wishes and msgs, it's soothing and comforting to read so much support...
IMPORTANT HEALTH RELATED MESSAGE 2: I got to go home on 6/20/24 from the hospital! Of course, I have plenty of follow up appts and will have to battle chronic myeloid leukemia for the rest of my life. I'm definitely improving, though, since I'm not so swollen everywhere, my spleen isn't super enlarged, my white bl00d cell count isn't sky high, etc. I've been taking 1 ponatinib pill (those are EXPENSIVE. look it up. Thank goodness for medicaid...) and 5 ster01d pill every morning since leaving the hospital. Every night, i ta...
IMPORTANT HEALTH RELATED MESSAGE: Hi, everyone, as you know, I've been not around lately (when I used to be around and posted daily, etc.). Firstly, pardon me as my vision is now blurred, so it is hard to type posts. Recently, I've been in the hospital battling Chronic Myeloid Leukemia. I got told i have it last Tuesday. It'll be a week soon and my health is seemingly improving. That's not to say I'll be back any time soon, as I still need treatment here and time. I do understand if you part ways with me and my content. I w...
